YOU CAN HELP US BUILD
Dystrophic Epidermolysis Bullosa Research Association, Singapore (DEBRA Singapore), is a support group for patients living with congenital epidermolysis bullosa, a rare skin condition that in its most severe forms affects all of the body's linings, the skin, the linings of the mouth and oesophagus, and even the eyes.
Our goals are to :
Increase awareness of Epidermolysis Bullosa (EB)
Provide resources, support and funding for EB patients and their families
Create and strengthen networks for professionals involved with EB care or research, in Singapore and around the world
Be a regional centre of research excellence, and medical and diagnostic support
Foster the development of new Debra groups and mentor newly established ones.
Special Thanks to our Sponsors
One of our ongoing challenges and initiatives is to raise the awareness level of EB in our communities and nationwide. If you would like to help us raise EB awareness, here are some ways you can make a difference.
BUTTERFLY VIRTUAL RUN
In 2020, we can't run to help the Butterfly children. But, now more than ever, we can stand as one Pledge S$25 to cover a distance of 5km. Wherever you are, record your run/walk/swim/cycle - submit your performance to us and receive a beautiful limited edited DebraSingapore face mask. Go the extra mile of the Butterflies!