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About Us
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Serving the EB community in Singapore since 2015
DEBRA Singapore is a volunteer-run support organisation dedicated to individuals and families affected by Epidermolysis Bullosa (EB) — a rare and incurable genetic skin-blistering condition. Often described as having “butterfly skin,” those living with EB face daily challenges with wound care, treatment, and access to specialised resources.
Since our founding in 2015, we have grown to engage more than 20 families across Singapore. Our work focuses on easing the burden of EB through subsidised essential wound care and dressings, resources, emotional support and a community to patients and families navigating this devastating condition.
Apart from that, we support clinical and social-behavioural research, and facilitate clinical trials and meetings within the region.
Vision
A world where no family faces the challenges of Epidermolysis Bullosa alone, and where every individual with EB can live with dignity, hope, and access to the care they need.
Mission
​To support and empower people living with EB in Singapore through compassionate care, community engagement, education, advocacy, and collaboration with global partners to drive meaningful change.
Our Impact
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Helping over 20 families in Singapore
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Raised over $240,000 for patient support
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Netflix documentary “Butterfly Children”
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Supported clinical trials, workshops and EB meetings in the region
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Raised over $240,000 for Ukrainians with EB since the War
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Partnered with local hospitals to support patients
Partners
