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Resources

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About EB

Epidermolysis Bullosa (EB) is a rare disease whereby the skin blisters and peels at the slightest touch. There are four main types - EB Simplex (EBS), Junctional EB (JEB), Dystrophic EB (DEB), and Kindler EB (KEB).

Image by Alex Khaizeman
Getting Diagnosed

Learn how EB is identified through clinical assessments and genetic testing. Early diagnosis is key to understanding the condition, guiding treatment, and supporting families in planning for care.

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EB Care & Patient Guides

Practical resources and everyday care tips to support those living with EB. From wound management and nutrition to emotional well-being, these guides help patients and caregivers navigate life with EB with confidence.

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